Think I might make a call to my neuro. Had several spells of "leaking out of my nose" often thinking it was bleeding, but just clear. It mostly affects women of childbearing age who are overweight or obese. Idiopathic means that the cause of this raised pressure is unknown.
However, not everyone with IIH has papilloedema.Papilloedema is a sign of raised pressure within the skull (raised intracranial pressure). However, it may have little effect on other symptoms, including headache. Idiopathic Intracranial Hypertension (Idiopathic means of "unknown cause") is a serious neurological condition in which high cerebrospinal fluid (CSF) pressure within the skull that causes unbearable headaches, swelling of the optic nerves and can result in loss of vision or blindness.

Get the latest public health information from CDC: A lumbar puncture - sometimes called a spinal tap - is a procedure where a sample of CSF is taken for testing. Therefore, someone who has had a shunt inserted needs regular check-ups to make sure that it is working normally.The second type of surgical treatment is around the eye. The ear-brain connection.

Questions sent to GARD may be posted here if the information could be helpful to others. You may also want to contact a university or tertiary medical center in your area, because these centers tend to see more complex cases and have the latest technology and treatments.If you can’t find a specialist in your local area, try contacting national or international specialists. The shunt is run from either of the following:However, there can be problems with a shunt. If a cause is determined, the condition is called secondary intracranial hypertension, rather than idiopathic.Your brain and spinal cord are surrounded by cerebrospinal fluid, which cushions these vital tissues from injury. Pseudotumor cerebri (SOO-doe-too-mur SER-uh-bry) occurs when the pressure inside your skull (intracranial pressure) increases for no obvious reason. This is because the condition isn't harmless (benign). Brain surgery (neurosurgery) may also be used. Intermittent migraine headaches However, in someone who is not overweight, there are some 'risk factors' that are thought to be associated with the development of IIH. The subarachnoid space that contains the CSF cannot expand and, because of this, the pressure around the brain rises.This raised pressure leads to the symptoms of IIH. Loss of vision Investigations can include, for example, Your may also have a more detailed eye examination. rare disease research! If papilloedema is not recognised and treated, it can lead to a condition called optic atrophy where there is deterioration and loss of function (degeneration) of the optic nerve. Various theories exist as to what may be the cause. Patient Platform Limited has used all reasonable care in compiling the information but make no warranty as to its accuracy. Intracranial hypertension, idiopathic; Pseudotumor cerebri; IIH Idiopathic Intracranial Hypertension (IIH), is sometimes referred to by an old name, “pseudotumor cerebri” (PTC). This table lists symptoms that people with this disease may have. This will allow an eye specialist to examine the back of your eyes fully. CSF is made by a network of blood vessels inside the ventricles of the brain. Even though the clinical presentations of this condition are well-characterized, the pathogenesis remains unclear. Therefore, the main thing when diagnosing IIH is to rule out other causes of raised pressure within the skull. Dizzy spell Two types of headaches are caused by a change of pressure inside your skull: Low-pressure headaches (your doctor may call them spontaneous intracranial hypotension, or SIH) and high-pressure headaches (idiopathic intracranial hypertension, or IIH).A low-pressure headache often gets worse when you stand or sit. You may want to review these resources with a medical professional. Commonly a medicine called Treatment with medicines can work well for many people.

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